Nela

My name is Nela, I'm 32 years old. I was diagnosed with Tay-Sachs disease in 2017. Until I was 17, I liked skiing, cycling, swimming, going on long trips. Then I started falling while skiing, there were also falls when riding a bike and I couldn't stand up from a squat. Gradually, motor skills deteriorated. I started to help myself with trekking poles, later I replaced them with a walker. Today, I can hardly stand without support. My stride has shortened significantly, so I use a wheelchair for longer distances. I exercise regularly and attend rehabilitation. I have also been to rehabilitation several times. I worked in a sheltered workshop for several years. Now I visit FOKUS, which is a multifunctional community center. FOKUS gives me the opportunity to be in a team of people, and despite my handicap, to devote myself to various activities. Thanks to my family and friends, I can still go on trips and concerts, which I love so much.