Karolína

My name is Karolína, I'm 28 years old. In 2017, I was confirmed to have an adult form of Tay-Sachs disease. When I was 17 years old, I began to show weakening of my thigh muscles, I started falling, I was clumsy, I had difficulty walking up the stairs or getting up. The disease is constantly getting slightly worse, today I can no longer get up from the ground on my own, from my chair, I can only climb the stairs with help. I can only walk with support or with a walker, with which I can walk no more than 500 m, then I'm tired. I also have problems with speech, I don't articulate well. Rehabilitation helps me to maintain good physical condition, especially the Vojta method. I exercise regularly and go on rehabilitation stays. I like animals, my great "partner" in the fight against a bad mood is the rabbit Miss Bela, whom I take care of with love.